Well, I
have written already that cost of new medicines is out of
reasonable numbers but it looks like we are just in the beginning of
the crazy era when
medicinal products will be available for only a minority of the
society.
European
officials have approved the Western world's first gene therapy drug
from a small Dutch biotech company, in a milestone for the novel
medical technology that fixes faulty genes.
The
formal clearance from the European Commission paves the way for a
launch next summer of the treatment for an ultra rare genetic disease
that will cost around 1.2 million euros ($1.6 million) per patient, a
new record for pricey modern medicines.
After
more than 20 years of experiments and a series of disappointments,
the EU approval of Glybera, which treats the genetic disorder
lipoprotein lipase deficiency (LPLD), is a significant boost for the
gene therapy field.
Joern
Aldag, chief executive of Amsterdam-based uniQure, said more such
treatments would follow and argued a high price was justified because
gene therapy restored natural body function and did not just offer a
short-term fix.
"This
provides higher benefit to patients than the classical protein
replacement strategy and this is why we think we should be fairly and
adequately compensated," he said in a telephone interview on
Friday.
And
regarding the moral part of the story. It looks like we do not have
any issues here, right? There are already on the market things which
are not available for the majority of the population like cars,
houses, jewelery etc. The same situation can be with medicinal
products. If health is a critical resource – this idea has to be
successfully exploited and profited – in this case by Big Pharma.
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